Hopelessly devoted 

Cleaning out a bathroom cupboard I come across a brown faux leather deep purse with a metal clasp which gives a satisfying clunk when I open it.  Inside are at least 50 small metal curling hair grips.
These contraptions were how the ladies in the 30’s and 40’s achieved curls and ringlets in their hair.  You grasp small sections of hair in the metal grip in the middle, twist it round until you reach your scalp and close the attached metal clasp over so it’s kept firmly in place.   You then sleep with a head full of these and in the morning uncurl your  hair and look like Mae West or Sophia Loren.  At least this is the theory,   I found these chunks of metal impossible to sleep in and my best ever result was more Lena Zaveroni than Shirley Temple. 

But my Nana wore these in her hair every day that I remember. Catching her curls in her hair net, she would look neat and respectable, no matter the vagaries of the inclement Scottish weather.  I hold the dull metal pins in my hand and smile.  These are in my ‘keeping’ pile.  I don’t need them to remember her for she is in me, but it’s lovely to have them as a reminder of the torture she inflicted on herself to be feminine and attractive for my Papa.

They were together for over 60 years and in all the time I spent with them there was rarely a cross word.  And we spent quite a bit of time with them.   As soon as the school bell went signifying summer holidays, my sister and I were in the car for the 8 hour drive south where we would spend the entire holidays in the company of Nana and Papa while my parents scooted homewards as quickly as they could.  I loved these long summer holidays.  Largs had Nardinis’ ice cream and seemed more vibrant and cosmopolitan than Wick and from here we were off on trains and buses to ‘exotic’ destinations such as Eyemouth and Blackpool.  My grandparents had very little but they scrimped and saved to give us children memorable holidays and loads of love and attention.  Much of who I am today came from what I learned from and observed of them.

Yet, like all of us, they had their foibles.  Into their one bedroom flat with the creaky floorboards and tiny bathroom, they crammed as much of their furniture as they could when they downsized from their 3 bedroom house.   Stuffed  into every cupboard, nook and cranny, was wool and knitting needles and bits of paper,  card and string and jam-jars full of bits of broken but still useful plastic or metal objects.  Theirs was the ‘make do and mend’ mentality so typical of their generation and they  hoarded as if there was going to be another war, so the mound of items only increased with advancing years.  However great the growing melee of stuff, they both  were scrupulous about cleanliness and  their approximation of tidiness which was hampered somewhat by the amount of heavy wood furniture gathered in such a small space.  The illusion of any room to move was also impacted by Nana’s decision to cover her floors in brown and tan flecked carpet so you were never sure where the heavy dark furniture ended and the carpet began.  She also liked her heavy tan and taupe settee suite.  “It’s easy to clean” she would say, moving one of the several sheepskin rugs and brown blankets off it to give it a daily brush down.  “Brown is a practical colour” she would tell me.  I would nod my head, mute.  I was not expected to proffer any opinion but to silently agree.

As a child, I never noticed the clutter, as an adult I sigh but my focus is always on them and their well being.  It becomes more and more obvious that every visit could be a last and Nana is fast declining so I spend as much time as I can in Largs, tending to the geraniums that fill the windowsills and listening to her stories, again.  I am fast asleep on the sofa bed the morning that the congratulatory telegraph from the Queen arrives. 60 years married deserves such an honour and Nana bursts into the living room with such vigour that I immediately  leap out of bed, tense and alert.  “It’s come, it’s come” she shouts, her voice restored to that of earlier years.  In her hand is the opened envelope which is being waved about like a valedictory flag.  It’s as if she is  a young girl again, her eyes are shining bright and  the metal curlers are being dislodged as she tosses her head.  She is more excited and more free than I have ever seen.   I guide her to her chair and as she catches her breath, the adrenalin leaves her body, her age creeping back on in waves.    I cuddle the now skinny frame as hard as I dare, trying to not let go, willing her more life, more time.

Of course,  not long after, she passes, and during the mourning period my Mother sits with my Papa and offers to  redecorate the flat. Papa sits silently for a while. 60 years of love and devotion,  of recognising that the house is Nana’s domain, are now gone.  These decisions are now his and his alone. And with the air of a confessional supplicant he leans over and quietly asks ” Can we change everything to blue? I’ve always hated the colour brown”!

News troll.

So here we are.  Donald Trump being inaugurated as the 45th President of the United States and Prime Minister, Teresa May, and a number of her cabinet colleagues, noising up the Europeans ahead of triggering article 50 and the start of the procedure to exit England out of the European Union.  (I think the Scots will rebel and will pitch to leave the United Kingdom.  Derek Batemans recent blog on this is worth a read).

In the space of eight months a shift has happened.  There appears to  be a move away from the status quo, a desire for change, a harking back to the past not the future. image courtesy of we-heart.com

Image courtesy of we-heart.com 

Few saw this coming;  the experts and the pollsters predicted incorrectly.  When the results of June 24 and November 9 poured in, many sat in disbelief and shock.  Discrediting experts started in the Brexit campaign and Trump has extended this to calling all media who criticise or challenge his thoughts or position as being ‘Fake News’.

It would seem in today’s world that being an independent voice, an expert, is not a positive attribute.  When most of the Western world has access to the vastness of the internet, many are not afraid to share their thoughts, views and opinions using social media.     Who needs experts when it’s possible to do a Google search on almost every topic imaginable?  And there is little repercussion if we communicate inaccurate information or portray opinion as fact. And adding to this dangerous powder keg  of division and bile are those who seem to think they are wearing an invisibility cloak as they post their views – much of which they would never say in person.  With today’s need for 24/7 news, we have created a golden gift for the uninformed, or unscrupulous politicians and leaders.

Not for a while has Europe and  America been this divided, so riven with fear and confusion. The rise of the far right again in countries such as France, Austria, The Netherlands, Belgium and Italy is deeply concerning.  And in the USA, not since its inception has a completely unproven and more divisive candidate ever risen to the office of President of the United States.    And tried to use 140 characters to bend the truth, openly lay bare his character and demonstrate that his focus is not on leading the free world but on narcissistic and trivial issues such as just how many people turn up to watch his inauguration.

With experts disavowed and a temperamental impetuous President able to reach for his phone to communicate directly his uninformed opinions and thoughts, the world becomes a more dangerous place.  The apparent triumph of opinion over fact, of popularism over expertise, of lies over truth, of doubt over certainty, has grave potential to misinform and even worse encourage misogynistic, xenophobic and racist behaviour and action. Combined with the high profile of the new President of the United States, bawling “Fake News!” every time news reports prove and discredit his rhetoric  (which is likely to turn into a daily farce) it begins to generate a climate of fear and distrust, of questioning and mis-belief and confuses the real fake news which Putin has been playing with over the past decade.

Of course, there has been much scepticism about the Russian’s use of Kompromat, particularly when much has been lauded about a new era of Russian/American relations and their supposed support for Trump.  Make no mistake – they are masters of this new cold cyber war, planting fake information to encourage free world voters to vote in a particular way and to feed the myriad of ever hungry news media.  I’m not the only one who looked at the Facebook post which stated that Donald Trump had previously said;

“if I were to run, I’d run as a Republican. They’re the dumbest group of voters in the country. They believe anything on Fox News. I could lie and they’d still eat it up. I bet my numbers would be terrific.”

I didn’t re-post it; but I didn’t challenge it either.  Everything I’ve seen or heard about Trump made me think, he could have said this.  And this is one of the more tame examples.  An Ipsos poll recently conducted in the US found that 75% of American adults who were familiar with a fake news headline viewed the story as accurate.

The recent Buzzfeed leaked story about Russian “ladies” and Mr Trump was an interesting case in point.  Look at how the axis of the story turned, more column inches trying to discredit an ex MI6 officer known for his Russian intelligence expertise, rather than what this was saying about character and judgement of the then President elect; a very clever and effective piece of PR.  And for all of the denials coming out of the Kremlin, you only need to study Putin’s body language at the press conference held to deny the Kompromat allegations, to see a Master at play.

For valid and proven examples of just how much the Russians are investing in misinformation and propaganda, follow StopFake.org on Twitter and perhaps even donate.  Paying for well researched, corroborated and factual news reports may be one of the ways we can ensure we have a better version of truth in the years ahead. Let’s not be lulled into cosy comradeship ‘BS’ – the Russians are well schooled in this cyber-war.  And don’t get confused between this and Trump’s versions of ‘Fake News!’.  I believe they both want the same outcomes – to destabilise and discredit news reporting which challenges their actions and ideology.  To create fear and mistrust in established  organisations, in experts, so that when Putin or Trump are called to account over actions in places like Syria or the Middle East, they can manipulate or shout Fake News!  And the electorate, with doubt in their hearts, turn on each other.  But there the similarities end.  Trump is the amalgam of Billy Graham and Ian Paisley when they were spitting and spewing hell, fire and damnation from the pulpit.  Putin is the New Seekers crooning Kumbaya, lulling us into singing and swaying along.

But even valid news sources can be undermined by opinions of individual members of the general public.  Only last week the BBC trust upheld a complaint against Laura Kuenssberg, BBC’s  Political Editor,  for an interview she did with Jeremy Corben in which she had been accused  of inaccuracy.  And if you watch and read the reporting, this is a very tenuous complaint. I happen to really like her, she appears to operate from a place of great insight and integrity and is not afraid to call a spade a spade when necessary.  She’s been reporting on politics for many years and is widely regarded by her bosses as being “tough, influential, exceptional and hugely knowledgeable about Westminster politics”.  James Harding, BBC head of news,  made clear they support her completely and while respecting the Trust, they disagreed with this finding. However, it was disappointing that they did not report on this story more widely.  Democracy is not a linear process but it flourishes in climates of openness and trust.

It is easy to discredit experts and the media when we hear stories or reports that we don’t agree with, or dislike.  And while a cornerstone of democracy is that we each have the right to have our own beliefs,   to say and write what we think , and have the right to seek different sources of information and ideas,  we also all have a responsibility to share our expertise, knowledge and information appropriately, depending on our audience and their current knowledge and expectations.  And to use social media tools wisely.  Any fool can spout their thoughts, but a well-known, visible, powerful fool has a different level of accountability for the words they use.  Crafting a compelling but accurate narrative, appropriate to our audience, is the responsibility of any communicator.  For if we deliberately set out to mislead our audience, to create an environment where only our voice speaks the truth with no room for dissent or dialogue,  we are no better than the men of old; creating stories, and fear, by the casting of  stones.

 

Ye’ll o’ haud yer tea

The wind is blowing a gale and it’s bitter cold.  The kind of wind that ices through the layers of jackets and thermals and touches the skin, turning it to goose- pimple blue.  Yet the sun is shining weakly as we walk along the St Andrews Jubilee golf course.  Occasionally the weather quietens, allowing us to stop and enjoy the magnificent views of sky and cloud and the old course.  It’s Christmas Eve and Roscoe is in full- flow, charm-chat mode with his Aunties, who  enjoy his exuberance, allowing Craig and I to walk and talk without having to entertain.  On the 9th we cross a style, clamber over the sand dunes and start walking back towards St Andrews town with the East Sands beach to ourselves.  It is a perfect start to our Christmas break.

We are staying with the Aunties in Cuper, Fife on the East Coast of Scotland.  Only one of us is originally from the East Coast and we get to talking about the different belief systems and language between the East and West and the North and South.  Scotland has long been a land riven by its differences rather than its similarities.  In fact history shows Scots folks unite when they have  a common enemy, so it’s jolly handy to live next door to the English.

When the Scots last ruled themselves, there were clan wars and bloodshed and alliances were made, and broken as the wind blew.  Our natural tendencies are towards socialism which is why so many of the national trade union leaders are from Scotland.  It’s a matter of belief that we should have free car parking at hospitals, free public transport for OAPs and free higher education for Scots based children but all of this costs money.  I’m struggling to see how we can balance the books if independence from Great Britain was ever on offer again.  And without the Auld enemy to unite us, would we not end up turning on each other once more?

An example of the differences between the East and West Coasters comes from my Nana Godfrey.  She was  the eldest of 14 children and only had a rudimentary education before she joined service as a cook.  She was a make-do and mend sort of girl, every item could be found to have a reusable purpose and her only luxuries in life were her weekly copy of the Peoples friend and copious amounts of hot tea. Nana had lots of friends through the Brethren church and they visited each other often.  Never would she go anywhere without a packet of biscuits or some homemade cake or jam in her hand.  It was considered impolite to not have something to offer to supplement the hosts hospitality.

By contrast, the East Coasters start from a belief system that you’re welcome to visit but you’ll already have had your sustenance.  It would rarely occur to offer a bite to eat, no matter the time of day. And if you come bearing biscuits or wine, they will be smilingly accepted and put in the cupboard for your hosts to enjoy later!!

Of course these are generalisations.  Just as any student of national culture will tell you, these traits are a guide.  Not all Italians are competitive, highly self driven and success orientated.  Just as not all Germans are highly individualistic with a preference for  direct, honest communication and not everyone in France agrees that their superiors or elders know more, can bend rules or are better than they are.

National differences create challenge, spark debate and keep us alive to our unique place in the world.  They foster small groups and tribal or clan affiliations.  National  similarities give us identity and a broader sense of belonging and pride.

As Trump charges towards the White house with his rhetoric of what it is to be American, let’s all be aware of our national stereotypical shorthand.

And back hame, we haud our tea and far mair this Christmastime, and it was grand.

 

The mugging of Father Christmas

It’s the week before Christmas and we’re in the midst of dry season so the sun has a piercing hot-heat known for turning my particular shade of Scottishness, pinky-red.

Thankfully I’m sitting under a open-sided white marquee and the breeze from Lake Victoria is most welcome.  We are located on the edge of the “sports field” in front of the manufacturing plant as I’m attending the Uganda Breweries Christmas party. Guests are made up of management and their families, and all staff, first wives and first wives children.  Uganda is still fairly polygamous and to make sure we don’t end up with half of Kampala here, HR have been quite strict in managing numbers.  Even so, the sea of children outnumber the adults at least 5 to 1.

We’ve all enjoyed the matoke, ground nut sauce and goat stew and with bellies full, we await the arrival of the Big Man himself.  (In this instance it’s not Yoweri).  After a considerable period of time and much muttering from the East African Breweries MD, a flatbed truck appears and there indeed is the star attraction.  Decked out in black welly boots, and rubber gloves,  his velour red suit tightened by his shiny black belt and his cotton-wool beard firmly attached, the bell announcing his arrival is still clanging in my ears.

He balances precariously on the back of the truck as it starts to slowly make its way around the edge of the playing field.  The children seem to appear from everywhere in that magical way that African children can – emerging from the earth in a smiling burst of humanity.  The swell of children are beginning to shout and taunt Father Christmas, they are keen to know what he is planning next. In a fit of madness, or fear, he decides to start throwing the gifts from the mound of sacks piled high on the back of his flat-bed truck.   Of course the larger, stronger children can catch and whoop, the smaller ones start to cry.  The South African MD who has stood in silent shock, galvanises and begins to try to make his way to help Santa, but he cannot get through the sea of children. Now off script and besieged by a flood of children, the flatbed truck comes to a shuddering halt and in three seconds flat Father Christmas disappears under a tidal mass.  It is chaos.  Then, almost as soon as it starts, it is over.  Father Christmas is lying on the ground, naked apart from his underpants.  Red velour suit,  gone. Welly boots, gone. Stuffed tummy and cotton beard, gone. Rubber gloves, gone. Presents, all gone.

I look to see the older children charging away with shirts untucked and full of gifts and the littlies begging them for small morsels.  The parents seem unconcerned and return to their conversations and their beers. 

The remains of Father Christmas clambers back onto the flatbed truck and it roars off in the direction of the Brewery.

I’m not sure if he’ll volunteer for the job again….

Consumption

“It is only with the heart that one can see rightly

What is essential is invisible to the eye”.

Antoine de Saint Exupery, Le Petit Prince

Walking into a red brick church today, after a frantic drive of over 200 miles, I am struck by the amount of folks filling the pews.  It’s a thanksgiving service to remember a lovely gentle man.  I listen to the eulogy, beautifully written and delivered by his daughter, Clare.

She comes to a point where she says

“For me, going for a walk with Dad was so interesting, he was always in the moment – observing everything, a flower bud, picking out a bird song, noting a smell.

Everyone knows of Dad’s passion for gardening. There was a standing joke that on any walk or visit to gardens, Dad would return with a pocket full of cuttings to grow on.  How many of you in the congregation today have plants in your garden grown from Dads cuttings?  I  have it on good authority that his Candelabra Primula reside in many a Cheshire garden”.

What a lovely way to leave your mark on the world. A soft, gentle touch which breathes on season after season.

Later, we are observing the community who have come to the wake party – there are nearly 100 people in the room – and we note that none of these folk are from his work environment.  These are Tony’s friends from his passions – nature, the great outdoors, gardening, U3A, sport.

This stays with me as I drive home. I think of all these people I’ve just left behind, who have seeds and plants growing in their gardens due to Tony’s love and passion. Plants which need this incessant rain to flourish and bloom.  The grey ‘scotch mist’ which has hung around for days, continues, occasionally turning into sleety, dirty rain drops necessitating a constant need for windscreen wipers.  The car is filthy.  The grime from the rear windscreen wiper builds up either side of the blade creating my rear window on a murky world.

So knowing I’m too late to make my evening meeting and with eyes tired from driving in the rain, I decide to break my journey.  It’s a very slight detour to Bicester village.  This used to be an outlet centre ( I know this as we used to live 6 miles away when it originally opened).  But now it’s become a consumers designer dream world, stuffed full of Bond Street type stores, all with goods at still vastly inflated prices, masquerading as bargains.  I don’t know why I thought stopping here would be a good idea.  Every time I visit now I become more depressed; by the obscene prices for big name brands, and by the gobbling tourists, arms full of crinkly cardboard bags who don’t seem to be enjoying the experience as they are so intent on grabbing the next item on offer.

On the plus side, it’s very prettily decked in Christmas lights, all twinkling in the dark, cool, night air and it has some of the very best public conveniences of any retail park I’ve ever visited. And I’ve been to a few retail parks in my time!

Empty handed and still contemplative, I’m heading homewards when right next door to Bicester village,  I spot what is quite possibly the largest ever supermarket superstore I’ve ever seen.  90,000 sq feet of retail space waiting to be explored.  Naturally, I stop and park up.  Walking inside this mecca of grocery and consumer goods, I am at once confused and overwhelmed.  I’m transported back to Kampala where, prior to Shoprite and the march of the South African supermarkets, our food choices came from the market, the grocery store in Kisimenti, or driving over the other side of town to visit Quality Cuts, the Belgian butcher serving fresh meat and cheese, European style.  Food quality is good in Kampala but in my early days there, choice was limited.  And food from the UK was rare.  I once called Craig in the office to excitedly tell him I had bought a Frey Bentos pie for tea.  This ‘delicacy’ being a rare find. Needless to say, this was a one time purchase.

So ending up in this Bicester superstore, reminds of a Christmas past, when I flew from Uganda back to ‘Blighty’. On my way to friends in Cheltenham, I stopped off at a supermarket to pick up some essential supplies.  But I left empty-handed, as I got to the cereal aisle and became so bewildered by the amount of choice, that I stood silently stupefied in front of the garishly coloured, neatly stacked boxes.  The entire aisle was cereal – both sides – stacked high.  It was just too much contrast from where I had come from.

When you spend time in places where people have very little, you learn to appreciate, and feel fortunate as well as guilty, about the vast amount that we have.  However,  having now been back in the UK for some time, and living in a very affluent and privileged part of England, I forget. Until days like today.

Today I remember, again, what’s important.  Having passions for activities and things which are meaningful for me. Taking time to show friends they are cherished.  Developing and nurturing my communities of shared interests.  Treading gently on this earth and, paying attention to the moments of learning.

Living in our world, at this time of year, it can be too easy to buy fancy presents to show people you care.  But the gift of time and genuine attention, of listening, of love, it’s priceless.

 

Wild mountain time

And we’ll all go together

to pull  wild mountain thyme

All around the blooming heather

will ye go Lassie go

We said goodbye to a close friend’s Dad last week,  He was 86 years old and had been diagnosed with terminal cancer.  By all accounts the family were pleased he was no longer in pain and he passed with his wife and two daughters by his side.

John – Craig’s Dad – is also 86, and we are conscious that this Christmas period maybe the last time that Roscoe shares with his Grandad.  It’s a poignant time – not least because John is frail and lonely, relying on daily visits from carers to wash, dress and feed him and take him to the bathroom.  He is done with this life.

But 86 is a good innings.  A lifetime’s worth of memories.  Loved ones mourn but are comforted by shared recollections of good times.

I also have friends who have tragically lost children, wives and husbands, before their time.  But, when is your time?

Back in 1996, I am training for a planned trip to Ammassalik in Greenland. ammassalikThis necessitates several visits to the Alps so as to improve my fitness and ski-touring and ice axe techniques.  I am also keen to understand and train for the threats and signs of avalanche. So we are on the Haute route ski tour, a high Alpine 120km traverse with 6,000m of ascent and descent linking two historic Alpine centres, Chamonix and Zermatt. It’s a structured route travelling Alpine hut to hut with little time for ‘ dilly-dallying’. It’s a hot day and so I take off my fleece before putting my outer gortex layer back on.  I’m carrying my rucksack with a week’s worth of provisions, largely a few pairs of clean knickers, a couple of T Shirts, my sleeping bag and mat and a bare minimum of toiletries.  I also have another pair of lightweight skis and my crampons and ice axe strapped to my pack.

hauteroute3 Tired, I am slowly zig-zagging my way across a mountain face, when I feel a cold wind.  The storm comes out of nowhere and very quickly I am confused and disoriented.  My companion is a fair distance ahead and as the storm rages, I get angry and common sense flies away.  I take my skis off, to walk my way out of the mess, and find myself up to my waist in snow. Defeated, I howl in despair and somehow the wind carries my call. He stops, looks back and retraces his steps.  30 minutes later, exhausted, I have my skis and skins back on. But my legs are no longer playing, they are shaking and struggling with the weight of my pack and with the biting wind and whipping snow.  Slowly, laboriously,  we make our way to an outcrop of rocks to hide from the wind and regroup.

By now, I am somewhat delirious and I’m repeating nursery rhymes  to try to gain some degree of control.  I know I’m becoming hypothermic, although I have little concept of the real trouble I’m in.  He does not leave me but is not talking either.  I don’t care, my own dialogue is also in my head and the unspoken is between us.  We both know this is untenable. At some point, I don’t remember how long, we hear a cry.  A man’s voice.  My companion shouts back and then he is with us.  He’s a member of the Swiss mountain rescue team that we had seen earlier in the day.  chamonixstorm-8770Thankfully when the storm came down and we did not appear, they came out to search.  After some discussion, he lifts my pack and heads off into the storm.  This time I find my voice and demand to know where he’s gone but there is no answer.  I am being pushed to my feet and ordered to get moving.  It’s a tone of voice that does not allow argument and I shuffle a few steps forward and using all my strength turn once more into the wind to zigzag upwards. Then the mountain man is back.  There is more discussion and we move on, heads bent.

I am lost in a world of Humpty Dumpty and Georgie Porgie but somehow I hear an almighty yell.  I stop and look around.  My companion is gesticulating wildly “Reverse! Reverse!!” I look down and a swirl of snow mist lifts enough for me to see my ski tips are over the edge and into nothing. I stand still, trying to work out how to go backwards.  I’m not scared. I’m not anything – in that moment I too am nothing, a tiny speck in an infinite universe. There is no fear.  Then the death scythe gets distracted and the mountain man is somehow behind me, pulling me back before setting my ski tips upwards once more.  vignettes-hut-haute-routeHe guides my every step up to the door of the hut and has obviously warned the team of what to expect.  They are on me like locusts, pulling off my wet gear, drying my hair before putting a tinfoil type hat on me.  I stand for a moment, like a compliant rag doll, before falling to the floor in an undignified heap.  They carry me upstairs to a huge log fire where I am put in a wooden chair almost on the hearth  itself.  I have a man either side of me rubbing my fingers, another two men have a foot each and they are vigorously working my toes.  Someone is behind me making my ear lobes sing.  They swap around taking turns as, rhythmically, they bring the blood back to my veins.  It happens slowly and then, with a whoosh of almighty pain, it is there, throbbing with every heart beat. I am given hot, sweet tea and they feed me sausages before cleaning my teeth and helping me to bed.  I don’t sleep – my fingers are swollen larger than the sausages I have eaten and they hurt so much that I put them in my mouth to stifle my cries.  My companion snores in the bunk bed next to mine.  The next day there is the roar of the helicopter blades and we find ourselves and our gear being airlifted down the mountain.pghm-chamonix_6

Sedated and on a drip in Chamonix hospital, I finally sleep, for three days. I am discharged on day four and that afternoon, my fingers still huge, are jammed into men’s ski gloves.  There is nothing of me exposed to the wind as I look down the mountain.  I know if I don’t push off,  my mind may not let me ski again.  So  I take a deep breath and feel the familiar burn in the thighs.  I only do one run but it’s enough to know that I can.  Even so, we never make Ammassalik as my injuries are too severe.

Yet for months afterwards I feel invincible.  Way into the summer months, the skin peels from my fingers, hands and ear lobes in great sheets.  In winter, I am shedding skin once more.  But it’s life affirming  and, although disgusting, I derive great pleasure from the scaly macabreness of it all.

Aside from the scaly skin which now reappears whenever my hands get really cold,  time thankfully steals the sharpness of memory.  It’s only when I struggle into ski boots or stand on top of particularly fierce mountains the fear grips me once more.

It was not my time then.  And – minus some tongue – it is still not my time now.  And I don’t know, like most of us, when my time will come. Our choice is surely not to put ourselves deliberately in harm’s way but to still spank the mountain when the winter breeze calls.

 

sunrise-over-vallee-blanche

The Poster ‘child’ and Poo

It is almost a year since my cancer surgery and knowing it is mouth cancer awareness month, I am chatting to my consultant surgeon at my 6 weekly consultation,  about what he does to raise awareness.  He shares some of his experiences with running free clinics and receiving ‘dogs abuse’ from Doctors who think he is scaremongering, and of the difficulties he faces getting the support required to set these up.  As part of this conversation I casually offer to support him in any of his efforts.

Less than a week later, he leaves a message on my answer phone.  BBC South are interested on doing a piece on mouth cancer and want a patients perspective.  Will I do it?  After a couple of conversations with the communications department of the Basingstoke Health Trust and a BBC producer,  I find myself in front of a TV camera.

blue-lips-mouth-cancer-awareness-1144x762Up to this point, I have been fairly quiet about my cancer.  I haven’t been deliberately hiding it, I know I need to take the time to get physically better, learn from and work through the changes that it brings and to embrace my new sense of self and identity.  I also know that I need to find a new job in the New Year  and that finding a new role is likely to be more problematic  with a recent cancer diagnosis and recovery story tagging along behind me.

So, I take time, writing this blog, going to all the various treatment and support groups, having fun, hanging out and welcoming support from my tribe of great friends while focusing on getting better.

tah-dah-1In one morning, I blow the control and management of my personal experiences right out the water.   I run starkers, out of the closet with a primal Tah Dah!!

It’s a positive and a negative being a communications expert in situations like these.  What is the message and the hook that will have people stop making tea and look at the screen? How will this message be memorable in 30 seconds?  What will make people do something different  from what they did before (i.e) stop ignoring persistent mouth and neck problems.  It is with a dawning sense of  dread, that I realise I need to show my “new” tongue and my scars to the good folks of the South of England, to wake them up to hopefully take preventative action.  And  not even my lovely Craig gets to see my tongue in private.

I am clear about my message – “It could be you” is the hook.  I want the audience to know that I don’t qualify in any of the so-called factors they say generates mouth cancer.  As cases are on the increase and more research needs to be done on the causal factors – don’t be lulled into thinking “it won’t be me”.

They edit it, of course, so the message is not so direct and I get quite cross when they find a loquacious but officious dentist in Birmingham to come on after my segment and talk about all the old traditional factors surrounding mouth cancer.  Grrr.

radio-imageBut as I have also agreed to do a live interview on Radio Berkshire the following morning, I know I have another opportunity.  Radio as a medium is very different to TV.  A verbal rather than visual hook is required to get people to stop and think.  My story becomes real when I talk about telling Roscoe, my then 11 year old son, that I have cancer.  Parents are likely to shudder at the thought of having to do this. And everyone can imagine what it would feel like, having to tell loved ones such horrible news.  Hopefully this has people booking regular visits to their dentist.

I then go  ‘live’ on Facebook  to drum up more awareness.  Not only am I now naked and out the closet, I am swinging from the door!

I shut my laptop, pack my bag and get ready to support a girlfriend with a values in action workshop.  In my handbag is a letter, the contents of which I have not shared with anyone.

It states that my recent breast mammogram results require me to have another mammogram and consultation with a doctor in 48 hours at the Royal Country Hospital in Winchester.

Shit happens doesn’t it?

star-jumpsSurely after the mouth cancer and the removal of half my thyroid, I am done for the year.  Surely it is my turn to be well after all the healthy living, breathing techniques, positive mind work, the alternative therapies, vitamins and new knowledge.  I convince myself it is nothing, they are being extra careful with me because of my recent cancer adventure.

So I waltz into the Hospital, smiling and positive, up until my left boob is being “squashed and squeezed” and the response to a casual question to the lovely radiographer, is ringing in my ears.  She is not able to tell me what is wrong, I need to see the Doctor.

I don’t think I have ever felt fear like this before.  Like a menopausal heat wave it works its way from the top of my head to the soles of my feet in a millisecond. And I can’t move as my boob is stuck in a vice!  Yup, out of the closet, Tah Dah! now really quite naked and very exposed.

radiography-image

Sent to the waiting room for 20 minutes, I decide to pop to the bathroom to do some deep breathing techniques and star jumps (quite tricky in a small space and in reality more like a hop with two wildly failing arms).  A bit puffed, I turn to face the door and see a poster all about poo.  It seems quite apt, in this moment, to be looking at various shapes of poo and what they mean.  So in the interests of sharing my new knowledge I take a picture.

image

Knowledge and a bit of levity are often the paddles you need when the shit creek appears.  And the ridiculousness of the situation, trying to do star jumps in a tiny toilet with a poo poster on the door, makes me laugh out loud.

Shortly afterwards, the Doctor shows me, on the small screen, my breast lump which thankfully turns out to be a cyst.  With the help of a sonogram and a ‘Dot-Dot’ large ‘Dot-Dot’ needle, it is aspirated and gone.  More mammograms confirm all is good and I step out on the street.

It’s been quite a 48 hours.

I head home for hugs with my boys.

Saying ‘Aaagh’

Today I went for my first ever Breast mammogram.  I am constantly amazed by how fortunate we are to have our National Health Service and for this breast screening to be free.  However, it turns out that many women do not turn up to the screening service, particularly the younger age group (the NHS is now offering screening services for a randomised group of women aged between  46 and 50).

pink breast cancer awareness ribbon
pink breast cancer awareness ribbon
This 6 minute test is undertaken by highly trained, caring and compassionate women, normally in a location where it’s easy to park. It’s so efficient I was in and out of the car-park within 30 minutes.  Breast cancer awareness is everywhere.  From Hollywood superstars, to business leaders, friends, Mums, daughters – the proliferation of pink cancer ribbons and fund-raising is huge. As is, unfortunately, the number of people we know and care about being affected by it.  Why take the risk and skip your Mammogram?  It’s 6 minutes of ‘uncomfortableness’, yet potentially  months and years of peace of mind.

So if people don’t turn up for mammograms for a cancer that is so widely known and prevalent, just consider the Herculean task of waking people up to the potential of mouth cancer.

In the UK, November is designated mouth cancer awareness month.

mouth-cancer-ribbon

Mouth cancer is on the increase;  by 39% in the UK in the last decade and by 92% since the 1970’s.  In my small friendship circle alone,  I know 3 other women who’ve experienced it and one lovely, gentle man, who has died of it. More people die from mouth cancer than cervical cancer and testicular cancer combined. Last week my dentist told me she’s just referred a 19 year old teenage boy showing all the signs of mouth cancer.

sam_0493This is not a cancer to be taken lightly.  Its effects are more visible and potentially more debilitating than many others.  Removing oral cancer, if it’s caught in time, can leave long-lasting affects on the speech and swallow function, on the function of the jaw and voice box, on neck and shoulder movement and additionally – in my case at least – a significant psychological impact created by  extensive scarring  to the mouth, neck, arm and stomach and having to learn to speak differently. img_6937 In many cases, mouth cancer survivors have to cope with developing a new self-identity.

Many of the populace – if they happen to be aware about mouth cancer at all –  figure it’s not going to happen to them.  Particularly if they don’t smoke, drink only occasionally, eat a balanced, healthy diet, have never had the HPV virus, are female, are fit and healthy and are under 50.

I was one of those people.

These factors were the reason that my dentist discounted mouth cancer for 4 months – and she is a great dentist.  Today,  as I type, a 47-year-old, fit, healthy and gorgeous woman is undergoing a 10+ hour operation because  4 different dentists misdiagnosed her mouth ulcer as being caused by a wisdom tooth.

mouth-cancer-check-2016-a4-downloadWe need to take responsibility for our own mouths.  Pay attention to ulcers which have not healed within three weeks, red and white patches in the mouth or any unusual lumps or swellings in the mouth, head and neck area.  Anything unusual in your mouth, anything that changes and stays changed for more than 3 weeks – go and see your dentist.  Specifically tell them you want to discount mouth cancer.  Put that thought in their head before they examine you so it’s in their conscious brain.

Here is what to do to check your mouth – it will take you less than a minute.  Do this in good light and pay attention to any changes

8-step-oral-cancer-screening

This picture is my mouth cancer, the day before my operation.img_6703 It doesn’t look serious does it?  But it was already a stage 2/3 cancer (I didn’t know this at the time) as it had spread into a lymph node.

As part of my monthly check up I discuss this lack of awareness with my Maxillofacial consultant surgeon.  He does all he can to raise awareness and catch people early.  He doesn’t want to sit in his consulting room, face a frightened patient and say “you’ve got cancer”.  He’d like to watch his young son play his football matches and read him bedtime stories, instead of standing in an operating room for over 12 hours conducting microscopic, intricate surgery to remove cancers that could have been treated differently if caught earlier.  His dedication is inspiring, admirable and his frustration palpable. I always know  when he pushes back his chair and runs his fingers over his head,  he’s stressed.  I’ve seen him do this enough times in the past year to know this pattern.

mouth cancer risk factors
mouth cancer risk factors
So many people have asked me, what causes mouth cancer.  The official line is smoking increases your chances as does heavy drinking.  If you’re overweight, eat rubbish, don’t exercise, have the HPV virus, are over 50 and male, you’re much more likely to be in the target zone.

But given none of this applies to me, I’m left with seeking different answers.  So here is my theory, based on my extensive reading and research over the last year.  In addition to the list above, pay attention if you are:

  • Stressed, and have been stressed for a long period of time;
  • Heading towards burnout (including feeling irritable, unpredictable, isolated, frustrated, confrontational, irrational, incoherent, always tired, eating or drinking more);
  • Hold, or have held, a mobile phone to your face and ear for over 20 minutes for long periods of time;
  • Grow up in a household with parents who are heavy smokers;
  • Spend, or spent time in, smoky atmospheres even though you have never smoked yourself.

Make a date with your mouth each week. Consider this to be an essential part of your personal insurance policy for the years ahead. 

May  you, and your loved ones, live long, happy, healthy, productive, cancer-free lives.

And may Mike get to spend more time with Henry.

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Just who do we think we are?

I once worked for a publicly listed company  which had a very charismatic and passionate CEO who founded the company.  As a result, he set the moral compass and values of the organisation.  And while this resulted in a period of success and market change, the far-reaching impact was many lived in fear and forgot about truth and honesty.  So when big decisions came to invest in a more risky and global enterprise, it was the CEO and the ever voracious appetite of shareholders which resulted in what became a catastrophic over reaching  of capacity and capability.  At the time when we most needed an effective Chairman and Board to ask calm and collected questions and balance the power of the CEO, they were effectively sidelined by his single-minded vision for the future.

Today as a nation, we teeter on the edge of a similar story.

blog-magna-cartaThe structure of governance in our country has developed since the  Magna Carta, to create balance and fair challenge and to protect our democracy and rule of law.  Our  (un-codified) constitution defines how we govern our democracy and sets out the way in which our country will be run.  It ensures power is balanced and limited, to safeguard and protect the rights and freedoms of the citizens of our country and it does this by giving three main bodies constitutional power:

1.  The Executive (Government)

2. Legislature (Parliament)

3. Judiciary (judges)

By separating these three bodies they provide a check on each other, ensuring power is not concentrated on any one area.

I share this because I’m struggling to understand the vehemence of some of the news headlines and media reports, and by the dangerous rhetoric espoused by some un-elected spokespeople, as a result of the decision taken by the Judiciary last Thursday about who has the power to trigger Article 50 and the exit of the UK from the European Union.

This decision was founded in our constitution – the Government cannot take away the rights of all of its people (those who voted in, or out, or who did not, or could not, vote at all) by issuing an Executive decree.  blog-conservative-leader-theresa-may-addresses-party-conference-612810942-57f4f2e5c5b99So when Teresa May told the Conservative party at their annual jamboree in September that she would trigger article 50 by March 2017 – the Judiciary have decided she was breaching the limits of her power.

As UK citizens, we elect our members of Parliament to act and make decisions on our behalf.  Their role is to represent us and their political party by participating in debates and voting on legislation and other matters. We cede our control of decisions to our elected MPs.  Our rights (including are we in or out of the European Union) can only be taken away by an Act of Parliament, voted for by our MPs  and this is why the Judiciary have ruled that the Government alone cannot invoke Article 50 to trigger our exit from the European Union.

In the context of Brexit, much as though it was lovely to have our say, it was never legally binding as constitutionally we don’t recognise the opinions of individuals.  the-great-thing-about-democracy-1-quoteOur current democratic principles mean we have given the right to make these decisions to our elected Members of Parliament.

But this is not how some sections of the media are reporting this.  There have been personal attacks on individual judges, a bullying Governmental line, an ineffectual and embarrassing Lord Chancellor, Liz Truss, who took over 24 hours to defend the constitution and Judiciary (and whose defence was less than weak) and a general lack of understanding of democratic governance in our country.

So what kind of democracy do we want?

Let’s look at our choices.  We can have a smaller, national democracy focused solely on the rights of all UK citizens.  We can have a larger, more international democracy focused on the rights of a broader population such as Europe.  We can have no democracy at all and instead go for a, hopefully benign, dictatorship.  There is no such thing as a perfect democracy.  No one size fits all.  Look around the world – each nation-state has its pluses and minuses in how it chooses to govern  and enact their rules of law.  However, the point is that it is impossible to give voice to each individual, and on every decision; for society to function, we need to place the responsibility to make and implement decisions for the many in the few.  That’s a big responsibility, both for those passing it on, and those receiving it.  And that’s why the independence of the judiciary is so important.

And to get an idea of what those choices may be, we need look no further than our American allies and their codified constitution, where possibly they are facing an even bigger catastrophe about their national identity and how they see themselves.  Voters there have a choice between the rock and the hard place. quote-the-difference-between-a-democracy-and-a-dictatorship-is-that-in-a-democracy-you-vote-first-and-charles-bukowski-26894 But plainly there is one vote that will uphold their existing constitution and rule of law, even if she is feathering her own nest at the same time, and one who has clearly, unequivocally stated he will operate largely as a dictator and ignore any checks and balances on his power and decision making process.  I’m not even sure I would describe Trump as benign.

So let’s not sleepwalk into complacency.  We have a Parliamentary democracy, which operates with the governance of the Executive and Judiciary to balance out its power for very good reason.

blog-justice-and-democracyNo matter how you voted in the European referendum, there are broader questions to be considered.  Who do you believe has the right to make decisions on your behalf?  What kind of check and balance do you want on how much they can decide on?  What should you be able to do and say should they make decisions you don’t agree with?

For while it’s true that no one thing should ever be always remaining just how it is, surely in terms of how we democratically make laws and decisions, to undermine a system that has developed over hundred’s of years, and is modelled throughout the world, can only lead to a less democratic and fair society.

So let’s pause. Let’s consider the impact on all of us, of this continuous drip feed of negativity and challenge. How much more fearful do we become? How much do we step away from our heritage and ways of governance into a pseudo democracy where we cede decision-making control into the hands of newspaper barons and those who shout the loudest.

Be careful of what we wish for. Before it’s too late.

arthurmiller106419

 

Fakery

During an unusual spot of Motherly baking today, I burn my arm.  While I’m calmly reaching up for the burn cream, fetching the first aid kit from the bathroom and applying the dressing with one hand, Roscoe enquires, while sitting on a chair,  if I’m okay.  mother-and-cook-book“Well, I’ve just burned my arm on the oven door”.  His response?  “Again? That’s just careless”.    During my suppressed, and combined, snorts of hurt and irritation, it strikes me that once more I am faking it.  That what I’d really like to do is run, banshee-style, round the kitchen while waving my reddening arm and screaming rude words, at decibels so loud the neighbours can hear.

It makes me laugh to consider how I’ve used fakery in daily life.   Lots of us have Facebook lives, the ones where our personal brand takes on an idealised hue.  In my case I tend to post photographs of when we’re on holiday, when Roscoe is either acting goofy, looking handsome or lovingly at his adoring Mother. dsc_2981 Or the occasions where Craig is laughing so uninhibitedly free,  I can hear it through the image.  Sometimes I post photographs of friends and cocktails or shots, or friends with cocktails and shots.  The point is if you were trying to figure out who I am and what I’m like by looking at my Facebook posts,  you would think I was always travelling, exploring, having fun.  And yes, I do experience all of this but real life is not as colourful or varied or exciting as my Facebook posts would have you believe.

gerber-babyI have a girlfriend who occasionally sends photos of her intensely cute newborn son.  Her response to the comment of “he’s always such a smiley baby” is to remind us that she’s hardly likely to be posting photos of him screaming and looking like a demented demon child.  And boy is this the truth.  Although, I must confess to laughing inside when everybody would look at a newborn Roscoe and say “ooh, he’s so beautiful”   – particularly as both parties knew he was a shockingly ugly baby.  Fakery in these wacky hormonal situations, is probably the safest option.  Thankfully by 3 months, he was a stunning, if noisy, cherub, so much so that we were once tailed in New York by a bloke who believed that Roscoe was the real-life Gerber baby.

And then I think about my trips to the hairdresser.  Okay, so he displays all the physique, muscles and charm of his other job, as a professional ice hockey player, but why do I need to put on makeup before I go?  I don’t remotely harbour any nefarious thoughts about him but my vanity and ego will not let me turn up “Au natural”.  Especially as once he’s cut and fiddled with my hair and then dried it to perfection, it  doesn’t match the ageing face unless there is a previously applied smidge of lipstick and a wand waft of mascara.

Then there are the visits to the cancer consultant.  Where I’m so intent on being the best patient, the one he smiles benignly at because I’m making such good progress, that I forget to tell him about the jaw pain and the scar tissue battle and the fizzy tongue.

And when I’m in professional situations,  I sometimes pretend to be something I’m not feeling at the time.   When I’ve a head full of cotton wool and a mouth to match, I’m up extra early to carefully apply the face paint, to make last-minute changes to the outfit planned and  to work through the witty one liners to “gosh, you’re looking really good”  My favoured response is “thanks, its amazing what a spot of cancer can do to a person”.  I have sat in meetings feeling rising panic, when nothing said seems to make any sense.  I have belly breathed through prolonged senior level bullying with personal attacks on my core identity, not on the job I’m doing, and still managed to act with integrity and remain professional.  I’ve held it together when the task ahead seems impossible and my team need me to provide direction, when inwardly, in that moment, I have no clue but my unshakeable belief that together, we will make it work.   I have walked into meetings not knowing what I’m going to say but open my mouth to sound credible and articulate.  I’ve used face paint and office wear like a suit of armour and act it out.  And it works.  Because in truth,  very few take the time to look beyond the superficial.  We are all caught up in busy lives, 30 second snapshots, caught in our beliefs and unconscious bias’ which filter our thoughts and vision.    I know, if you can act confident, sound confident, look confident, you will end up being confident.  It’s afterwards you can be surprised and shocked at what you’ve achieved.

2016 is the year where I have honed my ability to pretend.  Outwardly all can be sorted, while inside I am ripped and dripping in angst and fear so rich I can taste it.  The consultant call to the beach, to tell me the biopsy was not good news, and after a 10 week wait, waking to the inevitability of my right thyroid gone, tested my resolve but loosened my vanity.  What’s another neck scar to add to the collection?! img_0754 It’s become farcical to worry about something so trivial.  And besides I now know how to fake looking well.  Nothing that a scarf , a spot of war paint and some flicky hair can’t sort.

The gift of my cancer is to have given me time to cast my eye inward. To explore who and what I am and what I stand for.  And it turns out that this is now where the real challenges lie.

Loving and believing and trusting in myself so I no longer need to pretend.

final-quote-for-fakery

 

For those curious about change