Tag Archives: consultants

Meeting Silvana: through the looking glass

As part of my need to feel in control I’ve wholeheartedly embraced all alternative therapies. Well, I’m not wearing musk yet, my hair is not in braids and it’s too cold for jesus sandals.  But I’m doing virtually everything else.Hippy_by_Jinxxxi

Part of this philosophy is to use the cancer to treat the cancer.  So when my homoeopath suggested I ask for a slide of my biopsy, I took great pleasure in crafting a finely tuned missive to the PA of the consultant surgeon.  I wish I’d seen his face when he read it!

At our meeting with the team involved in my surgery, the consultant surgeon pushed a piece of paper with some scant instructions into Craig’s hand.  ‘Pathology 2, Dr Di Palma’.  It was made clear this was an unusual request.  Undaunted, we set off on our new hospital adventure, to find the ‘path 2’ building.  At one particularly confusing turn – neither Craig or I are blessed with a great sense of direction – we met a delightful old dear who had worked at the hospital for many years.  She was very keen to know where pathology lab 2 was located herself and, after asking directions, she took us into the bowels of the building, popping us out – like Alice and the white rabbit – next to the main incinerator. She then scuttled off, delighted with her new morsel of knowledge.Alice handles the white rabbit

‘Path 2’ is a modern building by Royal County Hospital standards, and after pressing the array of dizzyingly labelled buttons (none of which mentioned pathology directly) we were let in by a workman welding a paintbrush.  We came to a floor that had a tiny little Christmas tree and a bell. A young girl appeared, proudly wearing a knitted Christmas jumper, and was startled to see “real” people  in the building! She made a couple of calls and led us down into the basement, along a narrow newly painted corridor and into the offices of Doctor Silvana Di Palma.

This was the moment where I absolutely, knew I was going to be fine. As she ushered us to sit down I looked at this powerhouse of a woman and was totally impressed. From her perfectly coiffed hair, to her beautifully made up face, to her Dolce&Gabbana heels and chic fitted outfit, this woman oozed class and passion. And she was interested in me and what we were going to use the slide for.  She unwrapped it carefully from its paper and presented it to me solemnly; “the cell is cut on the diagonal”, she intoned, sounding like a cross between Sophia Loren and Gina Belluchi. “The pink pieces are healthy, the blue rings are carcinoma”.  She paused.  I could find nothing to say.  I was looking at pink blobs and blue blobs, and desperately wanting to impress her.  My mind itself had turned into a blob!

She seemed to sense that I did not share her passion, and my diplomatic husband valiantly came to my rescue by asking about the black and white photos on the wall.  They are her childhood village in a small part of Italy near the Umbrian mountains.  Smart, talented, beautiful and grounded; I wanted to ask her round for dinner!

So, as a scientist she wanted to know specifically how we were planning on using this slide.  I waffled on, talking nonsense, seeing my new best friend evaporate before my eyes.  Eventually I blurted, “I don’t know how it works, I don’t care how it works, what is important to me is that I’m doing absolutely everything to eradicate this and make the cancer go away”.  She patted my hand and gave me her email address.  “Stay in touch”, she said.  “I understand and support you in what you are doing and I’ll look out for your cancer cells and deal with your case personally”.

I am going to invite Silvana for dinner, along with my smart, bright girlfriends.  We will have much to talk about; I’ll be happy to discuss colours, just not pink and blue blobs!

 

 

 

 

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Hearing you’ve got cancer is scary.  I was like a headless chicken for quite some days.  headless-chickenI had no idea what to say or to think and looking back these initial few days were a blur of confusing medical terms, dark thoughts and odd bouts of euphoria (this will sound odd but those of us who experience this feel ecstatic; we are now going to do something about it – the choice is back in our hands – well the hands of our consultants, but you get what I mean!).

If you’re ever find yourself in this unfortunate situation, here are my top 10 tips to consider once you’ve been diagnosed and you’re still getting used to it.

  1. STAY AWAY FROM THE INTERNET!  I’ve put this in shouty capital letters.  It will do you no good to know the gruesome detail and you will scare yourself silly. Scaring you is part of the job of your cancer consultant – not some random from the ether.
  2. Stay away from the cancer forums of people who have had/have/or who passed away from cancers like yours.  Yup – relatives still post on how dear Doris or Jack soldiered on through their diagnosis and treatment.  For every great story about someone coming through the other side, there is one about misery, pain and  suffering. And guess what one we remember and regurgitate?!!
  3. Let your friends/family know.  They are your support network and will give you love, care and hope.
  4. Be open to love and care from whoever offers it.  Accept it graciously – one day you will be able to return the favour, right now it’s your turn.
  5. Don’t be a victim.  Yes, it’s cruddy news.  But now you’ve got cancer.  You can’t change it, so don’t blame yourself, your partner, your lifestyle, your diet etc.  That was then.  This is now.  Own your cancer and work out how you will manage it. Don’t let your cancer manage you.
  6. Be clear about who is doing what.  Otherwise known as Governance. Can you treat your cancer?  Can you remove it?   Know what you can and can’t do.  Outsource your cancer treatment to the specialists and focus on what you can control.  Some suggestions include your health, your diet and your mindset.
  7. Be clear about what you need from people and don’t be afraid to ask.  I’m blessed with great friends who all invariably ask how they can help and contribute.  I’m now used to saying “Right now, I don’t know what I will need, but I promise I will call you”.
  8. Don’t feel obliged to answer questions. Or to say “I don’t want to talk about this right now”.  Be relaxed about your honesty. Most people will understand, and those who don’t need to be jettisoned tout suite from your life.  You’ve enough going on without carrying those who are not true friends.
  9. Maintain your interest in the world outside.  Consider other people, their lives, what’s going on in the news. By staying focused on the outside world, you are giving your subconscious time to process and focus on keeping you positive.  There is always someone who is worse off than you.  Be grateful for what you’ve got and think about those who are dealing with problems bigger than your cancer; self-absorption will make you dull and maudlin.
  10. You are not a statistic.  You are you. You are a unique human being with the ability to make your own decisions and choices.  First,  work out how you feel.  Where in your body is this feeling?  Is it in your heart, your body, your head?  Is it somewhere else?  Can you describe the feeling? If it’s all in your head then you are going to love all of the numbers and graphs and data. Get stuck right in.  But know right at the beginning that statistics, at best, are an average.  They are not you, do not define you and may not even apply to you.

 

Oh and a ‘Brucey bonus’…..If you are in the UK, for the next 5 years you get free prescriptions on the NHS. Register straight away at your Doctor’s surgery.  This will save you a small fortune!

There will be more hints and tips as I go through this.  If you have any insights, or thoughts or experiences, please share!