Tag Archives: Fear

The joy of being normal

Craig and Roscoe are currently in Boston, proudly wearing their Barbados tartan kilts, watching football and baseball in stadiums, singing songs, meeting up with old friends, making new ones and being part of the joyous community of traveling Scots who believe that their football team may, just this once, advance into the knockout stages of the football World Cup.

Back in South Africa, I’m being asked why I’m not with them, why we’re not having this experience together.

Let me explain.

Cancer Adventurers often talk about greater meaning when they are through the worst. They speak of making choices which enables a deeper life. Of helping others, the planet, the greater universe. Some find meaning in organised religion and rituals. Some take up sport, run marathons, raising thousands for charity. Some change life course completely.

Me? No, this hasn’t been my path. My own recovery hinged on a strong desire to rush back to normality. To prove to myself, I was still here and still capable. Desperate to return to work, motivated to stand on the side of a football pitch, to drink wine and talk rubbish with girlfriends, my focus was on being normal, fallible, worthy of surviving. I knew, unlike the others who didn’t make it, I was so lucky to have normal in my life and I wallowed in it.

Fast forward, 10 years and it’s normal for me to make the choice to stay put. I haven’t had a single moments desire to be with my men on their trip. Frankly, if I’m blessed to live out my four thousand weeks on planet earth, my choice is to spend my remaining time filling my cup with bucketloads of what brings me personal joy. And for the avoidance of doubt, football and pubs just don’t do it for me.

This Father-son bond, where they actively want to spend time together, watching copious amounts of sport, talking nonsense, being funny, playful, free – just being my boys; well it brings me immense joy. It’s so different to any family dynamic that I had ever experienced; it feels like its own victory. Let them have these three weeks in their own four thousand; creating a chock-full kaleidoscope of stories and memories that they share or hold just between them. How powerful is this? How joyous!

I’m at an age now where friends and relatives are now dying more often than getting married. Currently, I have  friends who are actively dying. That is, they are navigating a terminal diagnosis which has determined that their natural life left is shorter than others around them. Perversely and somewhat controversially, we could consider them lucky; their diagnosis force familial discussions about their wishes, desires, memories and stories. These are rich loving, worthwhile conversations. It’s normal and abnormal all at once.

I’m all for not waiting to make the memories;  to spend the time now stomping through life with the people you love and care for beside you. Or being strong enough to say, that’s not for me but you go stomping on and I’ll be here when you get back.

I greedily rush towards having all the conversations; tough, loving and easy,  to the extent that my own son thinks I’m weird for being so free in expressing my thoughts and feelings and ideas and opinions- even when he doesn’t want to hear them!

But, when I go, he will know what to do.  He will know I haven’t held back. He will know he knows me. There will have been no conversation off limits, no emotion too difficult to dissect and express, no love hidden or important stories left untold.

My legacy is to make him realise this is normal.

And to thank me for it when the time comes.

 

 

 

 

Scaredy Cat

Biopsy, such an ugly word for a cancer adventurer.  It strikes fear into the healthy heart and soul, teasing possibilities and memories deliberately cast aside.

I watch the brain dance, trying not to let my body sway to its tune. All of the learnings I have written about over the course of the past 6 years need to be brought into the conscious, the brain must not be allowed to trigger the cortisol that wakes up the amygdala.  The call of Google must be ignored.  But it’s so hard not to give in, to not look for the worst instead of the best.

To stop myself, I go looking for inspiration and courage, seeking solace in the words and wisdom of others.  I am reminded of the poetry of Edgar Albert Guest;

When things go wrong, as they sometimes will,
When the road you’re trudging seems all uphill,
When the funds are low but the debts are high,
And you want to smile but you have to sigh,
When care is pressing you down a bit…
Rest if you must, but don’t you quit!

Life is queer with its twists and turns,
As every one of us sometimes learns,
And many failures turn about
When we might have won had we stuck it out.
Don’t give up though the pace seems slow…
You may succeed with another blow.

Often the struggler has given up
When he might have captured the victor’s cup;
And he learned too late when the night came down,
How close he was to the golden crown.

Success is failure turned inside out…
And you can never tell how close you are
It may be near when it seems so far.
So stick to the fight when you’re hardest hit
It’s when things seem worst that you must not quit.

I like the bluntness of these words.  There is no ambiguity or room for interpretation.  Stick with it, don’t give up, reframe.  It works to lift the spirit.

But then I find the following…

A Litany for Survival

For those of us who live at the shoreline
standing upon the constant edges of decision
crucial and alone
for those of us who cannot indulge
the passing dreams of choice
who love in doorways coming and going
in the hours between dawns
looking inward and outward
at once before and after
seeking a now that can breed
futures
like bread in our children’s mouths
so their dreams will not reflect
the death of ours;
For those of us
who were imprinted with fear
like a faint line in the center of our foreheads
learning to be afraid with our mother’s milk
for by this weapon
this illusion of some safety to be found
the heavy-footed hoped to silence us
For all of us
this instant and this triumph
We were never meant to survive.
And when the sun rises we are afraid
it might not remain
when the sun sets we are afraid
it might not rise in the morning
when our stomachs are full we are afraid
of indigestion
when our stomachs are empty we are afraid
we may never eat again
when we are loved we are afraid
love will vanish
when we are alone we are afraid
love will never return
and when we speak we are afraid
our words will not be heard
nor welcomed
but when we are silent
we are still afraid
So it is better to speak
remembering
we were never meant to survive.
A Litany for Survival.” Copyright © 1978 by Audre Lorde, from The Collected Poems of Audre Lorde by Audre Lorde.  Copyright © 1997 by the Audre Lorde Estate.

Goodness, this puts the brain dance into the baby corner.  These words call my soul and I experience the metallic taste of shame.  Living in South Africa, with all of its glory and its gore, these words SHOUT perspective.

Andre Lourde, a self-described ‘Black, lesbian, mother, warrior, poet’, uses this poem to deliver insight into the struggles faced by black Americans who have lived with fear ingrained.  I cannot begin to imagine a life lived like this.  A life lived, still by many, in this complex rainbow nation.

Here,  the most unequal society in the world, many are unemployed or have little or no income.  The latest statistics from the quarterly Labour force survey show an increase in unemployment.  In a country of roughly 40.7 million people aged between 15 and 64 (potential employees) approximately only 16.4 million are working.  Those who are not able to work, because they’re at school, or ill, or for some other reason, are estimated to number 13.2 million. That leaves 27.5 million people in a void.  And what do these 27.5 million people do to survive?  Maslow’s hierarchy of basic needs is not being met for huge swathes of the population. So many of us luckily struggle to understand the fear of not knowing where our next meal is coming from, or not feeling safe as we go to sleep – from attack, from the physical environment or from nature itself.  When survival is your job, there is little room for acknowledging anything but bare necessities.

While modern South Africa should not be neatly categorised into the haves and the have nots, the whites and the blacks and the coloureds, the roots of colonialisation cannot be discounted.   In addition, the seeds of corruption and state capture sown by the previous Zuma regime have created seismic disparity across all ethnic races, genders and ages.  Crime and poverty and fear, as expressed by Lourde’s words, are demonstrably evident in all regions here.   The need for change cannot just be expected to come from the political establishment and the ballot box – elections are on May 29 2024 –  but needs to be systemic, involving, including and not confined to, all levels of enterprise, communities, and the judiciary.

Ultimately, acknowledging my privilege and with Lorde’s words in my head offering the needed reframe, I lie on the gurney and fully accept the enforced sleep granted by the anaesthetist’s needle.

I will sleep the deep sleep.

The biopsy results will come back as benign.

I am blessed.